This is Sheri’s story living with fibromyalgia and Raynaud’s phenomenon. This is her story in her words please be respectful.
Fibromyalgia explained http://www.mayoclinic.org/diseases-conditions/fibromyalgia/basics/definition/con-20019243
Raynaud’s Phenomenon explained http://www.medicinenet.com/raynauds_phenomenon/article.htm
What is your name, age, and disease/invisible illness/mental health?
My name is Sheri. I am a single mom. I am 40 years old. I have fibromyalgia, Raynaud’s Phenomenon.
When did life change for you?
August 24, 2011, November 4, 2011 and January 20, 2016.
What was life like before diagnosis?
I was extremely active.
How has your diagnosis changed your life?
I live in constant pain. I lose sensation in my hands and feet and sometimes fall down the stairs. I have a hard time with day to day activities and I have to chose what I will do and what will have to wait. Sometimes I can’t straighten my back and other times I spend the whole day in bed. I don’t do the things I used to do such as exercising, Maui Tai, and I have a hard time spending time with my 4 year old. Sometimes even just grocery shopping or even taking a shower will completely drain me.
Please describe the best you can a day in the life of you?
I have to get up, get myself and my 4 year old ready for work and school. I work for 7 hours then pick up my daughter and start dinner. She gets a bath and sometimes I can shower (depending on my levels). I do lunches and get our bags packed and ready for the next day.
What was/is the most challenging thing you have faced because of your diagnosis?
The loss of even doing the simple things. Sometimes I don’t shower for days because it uses a lot of energy that I just don’t have. I have to work because I’ve been denied disability because they don’t believe it is a long term illness. I can’t keep up with my extremely active 4 year old.
Do you find that you can keep up with others?
Not at all.
What would you tell others living with your diagnosis?
I wish people would understand that even though I look healthy and smile that most days it takes sheer will power to even get out of bed just to do what I HAVE to do.
What would you like to tell others that don’t live with a similar diagnosis?
Same as above.
What have you learnt on your journey?
There is no relief or help. This is what my life is now so I learned to make the most of it and to keep fighting.
You are a Fibromyalgia warrior. Thank you for sharing your stroy with me and with the world. Hopeful for you always.